The Heartbeat Trust

Coming up in 2016:

Heartbeat Trust eHealth initiatives

Some of the leading forces in healthcare, including senior officials of the Department of Health and HSE, met in late 2015 to discuss how the health service could be re-designed to make wider use of technologies in the treatment of chronic diseases. 

The meeting was convened by the Heartbeat Trust which uses technology to manage heart failure patients.  Chaired by Dr Ambrose McLoughlin, former Secretary General of the Department of Health, the Trust is bringing together the top 25 in healthcare in Ireland involving Government, medics, HSE, CEOs of pharma, insurance, medical devices, tech companies about redesigning the health service

Pictured above are Dr Mark Ledwidge and Professor McDonald (Principal Investigators of the STOP-HF programme) along with Dr McLouglin at the launch of the eHealth initiative. The Trust, lead by consultant cardiologist, Professor Ken McDonald, could provide a model for tackling chronic diseases, which consume the majority of health service resources globally.  Using new technology the Trust has already shown that it can keep people prone to heart failure out of hospital as much as possible.  “If the health system went for a system of connected care on chronic diseases involving service providers, funders, GPs, e-health, pharma and med tech, then it would take pressures out of the system and make better use of resources,” according to Dr McLoughlin, Chairman of the Heartbeat Trust.

The Trust eHealth initiative is based on deploying smart community-based diagnostics to broaden the range of people who can benefit from landmark Screening to Prevent Heart Failure (STOP-HF) programme. It aims to bring the next generation of novel, specific and personalised therapies to the STOP-HF population, as well as delivering care in the community using eHealth initiatives such as telemonitoring and Virtual Consultations between primary and secondary care physicians.  This will build capacity in the health system and bring care closer to an empowered patient.

December 2015:

Heartbeat Trust Launches the Cost of Heart Failure in Ireland Report

New research conducted by the Heartbeat Trust in collaboration with the Irish Heart Foundation, the National University of Ireland Galway (NUIG) and supported by Novartis has found that the total cost of heart failure from a societal perspective is €660 million and is likely to increase in the future.  This is an original piece of research and is the first to look at the cost of heart failure to Irish society.

New research conducted by the Heartbeat Trust in collaboration with the Irish Heart Foundation, the National University of Ireland Galway (NUIG) and supported by Novh

Professor Kenneth McDonald, Medical Director of The Heartbeat Trust, Consultant Cardiologist and Clinical Lead for the HSE Heart Failure Clinical Care Programme, said, “Never before has the national cost of heart failure in primary or community care been assessed. This important piece of research shows the extent of the burden of heart failure throughout primary and secondary health care settings in Ireland.

“The National Heart Failure Clinical Programme has done a significant amount of important work for patients living with heart failure, but there remains a lot more to be done. Focusing on heart failure prevention the Heartbeat Trust has developed an effective screening and early intervention strategy to prevent heart failure and allied cardiovascular presentations in a cost effective manner. Notwithstanding these successes much more is required to manage this societal challenge.

This report should be utilised to help identify problem areas in heart failure prevention and treatment within the community as well as areas where spending can be increased to better serve the patient and healthcare professionals. The healthcare system needs to develop and implement strategies to cope with the associated cost of increased incidence, and do what it can now to prevent and manage heart failure incidence in the future.”

Main report findings;

  • Heart failure affects 90,000 Irish people and a further 160,000 Irish people have impending heart failure
  • The direct cost of heart failure to the HSE is €158 million annually, which includes hospitalisations, GP visits, nursing home care etc
  • The total cost of heart failure in Ireland is €660 million, which is made of direct costs (€158 million), cost of informal care and the costs of premature deaths (€502 million)
  • The majority of direct costs (47%) are hospital related
  • Heart failure patients occupy more than 231,000 hospital bed days each year
  • Seven per cent of all HSE inpatient bed days are due to heart failure
  • Primary care related costs, such as GP visits, make up 25% of the total direct cost of heart failure
  • Current spending on cardiovascular health accounts for just 6% of the healthcare budget, lower than EU average of 10%


For tal perspective is €660 million and is likely to increase in the future.  This is an original piece of research and is the first to look at the costport, please click here.

June 2015:

Heartbeat Golf Classic, Powerscourt

The summer sun shone down as sporting legends Liam Buckley and Tony Ward as well as stars from the entertainment industry Keith Duffy and Brian Ormond competed for first prize at the inaugural Heartbeat Golf Classic in Powerscourt Golf Club.

Many thanks to all of our sponsors including Arthur Cox, Newbridge Silverware, CCIS, Social & Personal and The Irish Mail on Sunday.

The teams competed in a mixed-four ball tournament and rounded off a great day with a BBQ in the beautiful surroundings of Powerscourt, where prizes were awarded by The Heartbeat Trust’s Chairman Dr. Ambrose McLoughlin

June 2015:

Run for Heartbeat!

A 30 - strong team represented The Heartbeat Trust in the VHI's Women's Mini Marathon on Bank Holiday Monday. The team were among over 37,000 who took part in the event. The orange weather warning didn't dampen spirits while helping  raise vital funds for The Heartbeat Trust. A reception was held in House on Leeson St afterwards. Thank you to all participants and supporters. If you would like to support the Heartbeat Trust, text HEARTBEAT to 50300 in order to donate €4.

May 2015:

Pioneering Cardiovascular Disease Prevention Project Announced to Mark European Heart Failure Awareness Day, 8th May 2015

A significant investment in the world’s first personalised heart failure prevention study was announced today to coincide with the annual European Heart Failure Awareness Day. The project is a collaboration between the pharmaceutical company Novartis and the Heartbeat Trust. The ground-breaking new study, entitled PARABLE*, aims to recruit 250 people over a two year period and will be the first project to be carried out by the new Dublin-based Innovation Centre for Personalised Medicine, which was launched in early 2015. The study, which will also be the first of its kind in the world, will shift the focus away from population-based intervention to a more targeted approach, which effectively focuses attention on those at higher risk of heart failure. This departure allows the million at risk of heart failure to be narrowed down to a cohort of 250,000 at the higher risk. Significantly, the project is focused on heart failure prevention versus treatment. For more information, click here

April 2015:

Launch of new Text Donation service

Text HEARTBEAT to 50300 to donate €4 100% of your donation goes to The Heartbeat Trust across most network operators. Some operators apply VAT which means that a minimum of €3.25 will go to The Heartbeat Trust. Service Provider: LIKECHARITY. Helpline: 0766805278 Please note that donations through text can only be made once every 24hours. For more information on fundraising for the Heartbeat Trust, please click here

February 2015:

Launch of new Innovation Centre in Personalised Cardiovascular Care 

The Heartbeat Trust together with The Minister for Health, Dr Leo Varadkar TD and Professor Ken McDonald (pictured right) will launch Ireland’s first Innovation Centre for Personalised Cardiovascular Care on Februrary 24th. Personalised care uses detailed patient profiling to tailor the right therapy to the right person at the right time. Places are limited and for more details click here

January 2015:

New Virtual Consultation Service

The Heartbeat Trust in association with Cardiomark is providing a new virtual consultation service, designed to help guide registered Clinician users about patients with suspected heart failure. If you are a registered user, click on the link below to schedule a virtual consultation. If you are not a registered user, please Contact Us to find out more and in your email provide quote the virtual consultation service, provide details of your qualifications and contact number and ask for Bronagh Travers.

Click here to schedule a virtual consultation 

January 2015:

Heartbeat Trust Public Information Meeting 

The Heartbeat Trust’s 5th Public Information Meeting took place in The Pavilion Theatre in Dun Laoghaire, Tuesday the 27th January 2014. The meeting was attended by over 170 patients and carers. The Heartbeat Trust’s fundraising officer Katie Reilly, discussed exciting ways to become involved in supporting the charity.

Professor Ken McDonald, Consultant Cardiologist presented an update on the STOP-HF study. Presentations on health and wellbeing were also given by Elaine Tallon, clinical specialist nurse and Karen Cradock, chartered physiotherapist.

November 2014:

Heartbeat Trust Researcher wins inaugural Brian Maurer Young Investigator of the Year Award 

The Heartbeat Trust is delighted to announce that Dr Chris Watson, a Senior Researcher with the Heartbeat Trust and the Conway Institute at UCD, was awarded the Brian Maurer Young Investigator Award at the recent Irish Cardiac Society Annual Scientific Meeting held in Athlone.

Dr Watson received the award for his work Epigenetic Modifying Therapy for the Treatment of Cardiac Fibrosis and Hypertrophy. This work formed the basis of Dr Watson’s recent funding award from Enterprise Ireland, which entails building a commercial case for epigenetic modifying therapy for the treatment of cardiomyopathies.

The Irish Cardiac Society annual Young Investigator Award was renamed this year as the Brian Maurer Young Investigator Award in honour of Dr Brian Maurer, former Chairman of the Heartbeat Trust, who passed away in 2013. For more details click here

October 2014:

STOP-HF research study wins prestigious award

The Heartbeat Trust is delighted to announce that the STOP-HF research study has been given a prestigious international research award by the Royal College of General Practitioners. Click here for more.

April 2014:

STOP-HF public meeting on cardiovascular disease in diabetes in association with the Health Research Board and the European Commission Framework Programme 7

A video summary of the second STOP-HF public meeting on cardiovascular disease has been released. The meeting was attended by over 300 people associated with the STOP-HF follow on programme with a focus on diabetes.

Hosted by the Heartbeat Trust, speakers include Professor Donal O'Shea, Consultant Endocrinologist as well as Professor Ken McDonald and Dr Joe Gallagher from the STOP-HF programme. View highlights in the YouTube clip.For a recording of the post talk discussion, click here.  

Jan 2014

Evidence Based Medicine provides a commentary on the STOP-HF programme 

The BMJ's Evidence-Based Medicine systematically searches a wide range of international medical journals applying strict criteria for the validity of research. Recently, experts critically appraised the STOP-HF study, supported by the Heartbeat Trust.  To read the report, click here

September 2013

The recent Heartbeat Trust public meeting on STOP-HF for the programme participants 

More than 300 participants met with the Trust and the study team in Dun Laoghaire, Co Dublin, in the first of a series of public meetings to discuss the results and the future of the programme.

The team was joined by Minister Alex White TD, Minister of State at the Department of Health with responsibility for Primary Care. Minister White who told the audience about the importance of STOP-HF and the need to strengthen primary care.

Speakers were Professor Ken McDonald and Dr Joe Gallagher from the STOP-HF programme. View a brief clip with highlights in the YouTube clip


 

October 2013

Prevention of Heart Failure biomarker driven prevention of heart failure. The PONTIAC trial is published in the Journal of the American College of Cardiology this October.

The PONTIAC study follows on from the larger STOP-HF study focusing on patients with diabetes. This study sought to assess the primary preventive effect of cardioprotective therapy in high-risk patients with diabetes selected by N-terminal pro–B-type natriuretic peptide (NT-proBNP). After 12 months there was a significant difference between the number of patients treated with cardioprotective therapies. Also, this was an effective and safe intervention for the primary prevention of cardiac events for diabetic patients pre-selected using NT-proBNP. 

The PONTIAC study, along with the STOP-HF study, provides important evidence that prevention of heart failure is an attainable goal. View a commentary in the YouTube clip.

The Heartbeat Trust is all about preventing heart disease

The Heartbeat Trust is helping to lead the way in prevention of heart disease

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The Heartbeat Trust is a registered charity based in Dun Laoghaire, Dublin, Ireland which is dedicated to  the prevention, early detection and treatment of heart failure (where the muscle of the heart does not work as well as it should do).

Located in the east coast area of Ireland, the Trust has a network of collaborators and stakeholders giving national and international impact.

The Heartbeat Trust also provides healthcare services and carries out innovative research in conjunction with the St Vincents Chronic Cardiovascular Disease Unit

Our research

To date there have been more than 80 peer reviewed publications from the unit. In addition, unit personnel have made in excess of 150 presentations at national and international meetings. To find out more about our research, click here

Our news

  • December 2015. The Heartbeat Trust launches new research in collaboration with the Irish Heart Foundation, the National University of Ireland Galway (NUIG) and supported by Novartis on the cost of heart failure to Irish society. For a copy of the report, please click here
  • May 2015. A significant investment in the world’s first personalised heart failure prevention study by the Heartbeat Trust to coincide with the annual European Heart Failure Awareness Day. For more information, click here
  • February 2015 Launch of new Innovation Centre in Personalised Cardiovascular Care. The Heartbeat Trust together with The Minister for Health, Dr Leo Varadkar TD will launch Ireland’s first Innovation Centre for Personalised Cardiovascular Care on Februrary 24th.  For more details click here
  • September 2014. The Heartbeat Trust in association with Cardiomark provides a new virtual consultation service for healthcare professionals, which is designed to help guide referrals for patients with suspected heart failure
  • October 2014. STOP-HF Research Study wins prestigious Royal College of General Practitioners Award. For more information, click here
  • November 2014. STOP-HF Researcher wins inaugural Brian Maurer Young Investigator of the Year Award. Click here for more
  • January 2014. Read the BMJ Evidence Based Medicine review of the STOP-HF study here
  • April 2014. Watch highlights of the presentations at the STOP-HF public meeting on diabetes supported by the HRB and FP7 here
  • September 2013. Inaugural Heartbeat Trust Annual Public Meeting - the STOP-HF programme and future initiatives. To view a quick video of the evening, click here
  • October 2013. Momentum grows for prevention of heart failure as the PONTIAC trial is published in the Journal of the American College of Cardiology. See commentary here
  • March 2013. The STOP-HF study is a major research programme focused on prevention of heart failure -  theheart.org
  • July 2013. The STOP-HF study is published in the Journal of the American Medical Association - see press release
  • July 2013. Adrian Hernandez, MD, Duke University, talks about the implications of the STOP-HF trial in JAMA - see report
  • August 2013. Gary S. Francis, MD, University of Minnesota, talks about Heart Failure with Preserved Ejection Fraction

Crofton Cardiac Centre, 3 Crofton Terrace, Dun Laoghaire, Co Dublin, Ireland | +353 1 2845735 

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